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Foundation to Eradicate Duchenne, Inc.
The Foundation to Eradicate Duchenne (FED) raises money to support the
world's only clinical trials network for Duchenne Muscular Dystrophy
(DMD). The clinical trials network known as CINRG works with scientists
all over the world on therapies for DMD - a fatal disease which
scientists now say is tantalizingly close to being cured.
For now, this clinical trials network prolongs the trajectory of the
disease until a cure can be found. Funding this clinical trials network
and the scientists with whom it works means that every dollar is
critical in this race against time. The FED puts an overwhelming
majority of the money it raises directly into research, which means
that each dollar raised brings the boys suffering from DMD closer to
the cure.
In pursuit of the cure, FED has raised millions of dollars for the best
DMD scientists and doctors around the world. Their efforts have
launched clinical trials with drugs such as prednisone, deflazacort and
pentoxifillin - drugs upon which Duchenne boys now rely to slow the
progression of the disease.
See the FED website at: http://www.duchennemd.org/default.htm
> To watch a video about Duchenne Muscular Dystrophy,
click here.
| Latest Events: |
John's quarterly visit to the MDA Clinic at Children's Hospital
3rd Annual Bull Roast - Richlin Ballroom
Edgewood, Maryland
11/06/09 7:30-11:30 pm
Walt Disney Marathon and 1/2 Marathon for Parent Project Muscular Dystrophy
Jan 10-11, 2010
Sponsor an Event:
Contact us
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> For information about the upcoming Marine Marathon this fall,
click here.
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